EDS - The Silent Disability
By Petra Conaway, PT, DPT
Aug 6, 2021In the world of complex wheelchair seating and mobility, it is unusual to see clients walk into the CIDE clinic with apparent ease. Although individuals with Ehlers-Danlos Syndrome (EDS) can typically ambulate and may appear to have no disabilities, this debilitating condition significantly impacts health and function.
EDS is one of a group of inherited disorders that results in defective collagen production. The most common type is hypermobility EDS, causing hypermobile joints, muscle fatigue, chronic pain and premature arthritis. This condition is often associated with postural orthostatic tachycardia syndrome (POTS), which is characterized by dizziness and increased heart rate.This was the case for Madison, a 33-year-old woman who came to us seeking an ultra lightweight manual wheelchair with a power assist device.
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